Hysterectomy In Your 30’s Part II: These Scars Tell A Story Of Suffering

Hysterectomy in 30's Endometriosis Adenomyosis
Hysterectomy in 30's Endometriosis Adenomyosis. What it's like to have a hysterectomy.

If you haven’t read Part I, check it out here—>Hysterectomy In Your 30’s Part I: An Agonizing End to Torment

Endometriosis Scars Surgery Hysterectomy

It’s been one week since my hysterectomy. There it is, one of the parts of my body that I hate the most. It’s on display for thousands of people to ogle. But even more than ogling, I want a message to be sent. I want awareness and understanding to be spread. The picture you mainly see of me may look healthy and happy, but this is my illness. This is the invisible illness you don’t get to see.

Having A Hysterectomy

As sad as I was last week, that didn’t stop my hysterectomy from happening. The minutes in pre-op seemed to pass like seconds. Before I knew it I was laying on an operating table with my wrists strapped down. I was thinking of my babies being born, then I was waking in agony. Day surgery nurses weren’t sure what to give me once I was maxed out on narcotics and still waking in pain. One of my doctors showed up and pumped morphine in, knowing that I’ve been on strong pain meds for the last few years.

My surgery start time was 7:40 and I came out of recovery at around 12:30. I waited in day surgery for my room until around 7:00 PM. When we finally got to my room Dirty Gentleman and my sis helped me get settled and waited until I was comfortable on my breakthrough morphine and headed out. As usual, my bladder did not awake for quite some time. That first night sucked as it usually does. My catheter came out at 9:00 PM and I another was inserted at 1:00 AM to drain my overfull bladder. Then again at 6:00 AM, and again at 11:00 AM. After the third time, they taught me how to catheterize myself, which is way easier then it sounds. Finally, at around 3:00 PM my bladder decided to awake and work! I was thrilled, and so were all the nurses on the floor.

Emotions Keep Taking Me Over

In the first 48 hours, I don’t think you really have time to reflect on what’s happened. Your body and mind are solely focused on healing. Okay, don’t judge me for this, but I seriously have this song stuck in my head while grieving in my weird way for losing my mutated uterus, Mystery Song? You should probably check it out haha. While I’m glad to not have a period, and I’m very much out of the horrendous pain I was in and hopefully will be for some time, it still feels weird. I feel way too young to never have another period ever again. I feel a little less womanly for sure. Less feminine, and definitely a lot older. I haven’t made sense of it yet, hopefully, at some point, I will though.

Until then, you can struggle through my emotions with me. My uterus was covered in adenomyosis and I had two large sections in my pelvis excised, ablazed and sent to pathology for testing. They did a cystoscopy, if you’re not familiar with that, check out my post on it from last year, There I sat with a bunch of old guys… Trust me when I say, it’s definitely something you want them to perform while you’re under anesthetic. Other than that, you can check out my incisions in the photo above. All 2018 are from last week. She did a beautiful job but you still have had organs removed and tissue burned and cut, and it hurts. It hurts in more ways than just the physical.

The Details You Want to Know

If you’re scheduled for a Total Laparoscopic Hysterectomy, I hope this helped you somewhat in getting your mind ready. I always find it easier when I know whats going on. Yes, they take your cervix and sew your vagina shut at the very top from the inside out. Just in case you were wondering ;). I know quite a few women who don’t realize everything is cut out except your ovaries if you’re able to keep them. They just float around like little astronauts in space afterward. It’s exhausting and somewhat traumatic, but you have to do what you have to so you can survive.

Questions? Words? Advice? Post them below as always, I love your comments <3

T….

14 thoughts on “Hysterectomy In Your 30’s Part II: These Scars Tell A Story Of Suffering

  1. I too have suffered from Endo and Adeno, started to have severe pain when I was 18. First Dr did laparoscopy, saw the scar tissue everywhere and closed me back up only to tell me she thought I had just been in an accident (which I hadn’t) a year later Dr #2 told me I had pelvic inflammatory disease, ran dye through my tubes and found one blocked at the base but the other open. I moved to my small hometown when I filed for divorce and started seeing Dr #3 who didn’t know a ton about infertility but was happy to open me up, took out scar tissue and found Endo everywhere, burned it and then ran dye through my tubes again to find the second time was now blocked about half way up (6 months after the first). This helped relieve pain for a few years but being 5.5 years ago it’s all started back up again. 2 drs since #3 were useless to me and just found a new Dr a month ago since we just moved again. She started me on lupron and progesterone meds last week with the intention of going into menopause then going on a permanent birth control to control the estrogen. Found out 2 days ago she resigned from the office so now I’m on to Dr #6. So far lupron seems to be doing what it’s supposed to and heat flashes aren’t too bad but if this doesn’t work then I’m going for full hysterectomy.

    So happy I found your articles, really anxious to see how it helps you in the future.

    Take care

    1. Thanks so much for sharing your story. I’m so sorry to hear about your experience, sometimes it’s really hard to find a good Dr. I do know getting an excision rather than burning can be much more successful. I’m also glad you found something that is helping with the pain! Do some research on Lupron, I know some girls who have had really bad permanent side affects from it. It’s not necessary for medically induced menopause but I know it can greatly help with pain ?. I found the hot flashes so bad a few weeks into medical menopause haha. I’d burst into a sweat in an instant and want to strip and have a cold breeze! I really hope you find a good Dr my thoughts are with you!!! So far the hyster has helped tremendously even just energy wise. I just feel lighter, still have days where I’m tired but it’s not the same as before.
      Wishing you a smooth medical menopause ? if there is such a thing!
      T

  2. Hi I’m 32 and just found out yesterday I have stage 4 endo. I’m terrified of figuring out what to do. I have to decide if I want to have another kid and just get the endo removed or have a hysterectomy. I only found out cause I went under to have cyst removed from my ovaries and my doctor couldn’t do that cause she saw all the endo. So as I heal from that I’m trying to mentally perpare myself for what’s next.

    1. Awe Claudia, I’m so sorry to hear this. Thank you for sharing your story and reading mine. It’s a really hard decision to make, for me there wasn’t a choice left, so that made it a little easier I think. Honestly, I think it’s something that is just so hard to prepare yourself for mentally, whatever you choose. The road ahead will be tough, but I have no doubt if you have been battling endo, you are much tougher my love.Feel free to contact me anytime you need to just vent it out.

  3. I’m 23 years old. Had 14 surgeries in 8 years for endometriosis, cysts and polyps. At 22 they did a complete hysterectomy (one year to today) my last ovary and cervix as well. It’s been a nightmare. Now everyone I know is having babies or is pregnant. HRT has been a struggle. And now next Monday have to have ANOTHER surgery for either scar tissue causing problems or the potential of the endo being back on my pelvic wall having been feeding itself off the estrogen. You stomach looks great! Mine looks similar to yours. <\3 Nice article.

    1. Thank you so much for sharing Kendra :). I’m so sorry to hear about your struggles. It breaks my heart to see SO many women who have suffered through this and still steritlity is the only answer. I can’t imagine how hard HRT would be starting from such a young age! I’m still taking estrogen even though I was lucky enough to get to keep my ovaries, just to stop me from ovulating until I can afford to get internal massage. It’s nice to know someone else’s stomach has the same warrior scars as mine <3. Thank you so much for reading and commenting!

  4. After having severe pain since my first period and only increasing At 26 I was finally diagnosed with adenomyosis . My daughter was only a year ( only child) by the next year I had a robotic hysterectomy leaving 1 ovary. They have me the “ it may not cure your pain but we can’t find any other way to try” speech . Now 9 years later I can say it was the best decision I have ever made. I’ve had zero pain since I healed. I’m incredibly greatful I had my daughter first . Every once in a while the thought of never having another child hits me . It’s a long mental process but overall being pain free and being able to excercise , long walks , a full month of functioning and not missing work is amazing . Stay strong and best of luck on your journey !

    1. Thank you so much for sharing this! It’s so encouraging to hear from someone who’s been through it and been helped by it! I already feel so much better so I’m really looking forward to what the next year will bring. Thank you for reading ❤️

  5. Hello I’m 38, just had my 3rd laparoscopic GYN and 1st DNC and was told post op that I have fluid in my ovaries drained and need to a total hysterectomy. I have endometriosis that attached itself to all my bladder and bowels and I had a cyst the size of a golf ball.

    1. I’m sorry to hear that but thank you for sharing. I hope your hyster goes well. If you need anything I’m here for you you can email me or PM me on social media ?. When is your surgery scheduled?

  6. Hi! I’m 30 almost 31 in april. I had a total hyst in october 2017 due to endo and adhesions. I have a big scar below my belly like I had c-section. I had a big ovarian cyst on my left ovary and multiple fibroids. I’m on visanne which retains water and make me bloat a lot.. I have hot flashes.. It drives me crazy. I feel at lost in my womanhood and my sexuality. I rarely wanna sex which is the total opposite of what my sex life used to be. It’s hard for me to explain to my husband I don’t feel like having sex in the rare occasion we do get time alone. It’s difficult to explain to people how i’m feeling. They always tell me :well it’s was for the best and At least you already have one child like it’s gonna make everything better…

    1. I’m sorry to hear about your hyster and Endo. Did you get your ovaries removed? Other people really don’t understand. Thanks for sharing your experience! Maybe your husband would be interested in reading the the mister hyster sisters website. The hystersisters.com can be really helpful for how your feeling as well! I hope things get easier for you ?.

  7. 27, getting prepared for my hysterectomy due to endo. Just wanted to say I found this and wish we could meet for coffee. Thanks for posting. <3

    1. Katie we can meet for a virtual coffee any time you like! Thank you for reading ?. DM me on my Facebook or IG page or email me with anything you need! All my handles are Coinsandbabble ?Tifanee@coinsandbabble.com

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